Chiesi Global Rare Diseases was launched with a central mission in mind: “Revolutionize the lives of people living with rare diseases.” The patient voice shapes our team. That is why it is so important to join together and celebrate the strength of the rare disease community.
We are proud to share that the head of Chiesi Global Rare Diseases, Giacomo Chiesi, has been recognized at the RARE Champions of Hope Awards 2021 as the RARE Champion in Advocacy, Industry.
“Over the years I have had the privilege to meet many incredible advocates and families whose lives have been affected by rare diseases. Each and every one of their stories is unique, yet they all share the same sense of hope – which is a testament to the resilience of this community. These stories drive our dedication to be a resource, partner, and most importantly – an advocate – for the entire rare disease community.” – Giacomo Chiesi, Head of Chiesi Global Rare Diseases
The RARE Champions of Hope Awards are organized by Global Genes, a non-profit 501(c)(3) corporation dedicated to eliminating the burdens and challenges of rare diseases for patients and families. We find inspiration in the global movement that Global Genes has created to deliver greater support to every person living with a rare disease.
The awards program honors and recognizes true champions for rare disease. In 2021, Global Genes focused on “recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders.”
“I would like to thank Global Genes for this honor, which I share with the entire team at Chiesi Global Rare Diseases. Although there is still much work to be done, we know the future for the rare disease community is bright thanks to the continued efforts of advocates and leaders like Global Genes.” – Giacomo Chiesi, Head of Chiesi Global Rare Diseases
To learn more about Chiesi Global Rare Diseases, listen to the Global Genes RARECast podcast, “Chiesi Charges Ahead in Rare Disease.” You can also follow @ChiesiGRD on Twitter and visit the Chiesi Global Rare Diseases LinkedIn showcase page.